What is SAS?
SATB2-Associated Syndrome (SAS) is a rare neurodevelopmental disorder, caused by alterations to the SATB2 gene. Individuals with SAS are often nonverbal, have dental issues and a higher risk of bone fractures. Many also face seizures and sleep disturbances. Despite the challenges, people with SAS are known for their friendly personalities and unique smiles.
Learn more about SAS
Who we are
SATB2 Europe is led by parents and caregivers whose lives have been shaped by SAS. We know the challenges, the uncertainty, and the strength it takes, because this is our daily reality. Our children are at the heart of everything we do. United by love, hope, and determination, we come together to create a different future - one with better care, meaningful treatments, and greater independence for those living with SAS.
What began as personal journeys has become a shared mission: turning lived experience into action, connection, and lasting change for families across Europe and beyond. We pursue this mission through three initiatives that shape everything we do:
CARE, CURE, and COMMUNITY.
Help us improve SAS lives!
Everyone with SAS deserves the chance to enjoy better health, receive the right care and live a more independent life. That's why we're promoting research and building the foundation for an accessible, clinical care.
Your support helps us improve the lives of people with SAS and give their families urgently needed hope. Every donation brings us closer to effective therapies, appropriate care and treatments that ultimately can reverse SAS symptoms.
